As most of you know by now, we are home again. We got home late Wednesday evening after they removed the pik line and sent us home. Marie slept most of the way, and we're currently just getting back to being in our little routines.
Tentatively, we have an appointment scheduled to get test results on December 6, though that may change. We've started doing the vitamines, frusterating and not going terribly well at this time. We have an appt on Nov 6 to set up physical therapy.
If you'd like to read up on Mitochondrial and Leigh's disease you can check out www.umdf.org. I warn you, this website is a bit of a downer.
That all said, we're happy to be home, and looking forward to Halloween on Wednesday. Luke and I will be escorting a ladybug and a dragon around to the usual places.