Thursday, September 23, 2010

Because of Mito...

Four years ago I didn't know what Mitochondrial Disease was.

Now...

Because of mito Sarah will grow up knowing her older sister only from pictures and videos.

Because of mito Marie never will go to preschool or have a first day of kindergarten.

Because of mito there is an empty chair at the table.

Because of mito there are many children we've come to know and care for that suffer so much every day.

Because of mito most of them can't say a word because it's robbed them of the ability to express themselves that way.

Because of mito I don't make oatmeal in the morning anymore.

Because of mito Josie can't talk to her best friend.  Her best friend is in Heaven.

Because of mito I've made some amazing friends, but if I was pushed I'd have to say I wish we didn't know one another at all.  I wish we didn't have this terrible disease to connect us.

Because of mito our hearts are broken.

Because of mito Marie never got to grow up...

We have had so many blessings in our life, and God has used this storm to draw us closer and grow our faith in ways that we are so grateful for.  I try to always find the praise in sorrow but the truth is its just sad sometimes.

Because of mito our second daughter is in Heaven.  We rejoice that we will see her again, but it is so hard to be without her here.

Because of mito I miss that smile...


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6 comments:

clarissa said...

amen!

clarissa said...

just stopping in again to see Marie's beautiful face and let you know I am thinking about you and praying for you! and it is just plain sad sometimes the way our lives' have gone... He has a purpose, even if we don't understand... God's Peace be with you!

Anonymous said...

aww...Brings a lump to my throat and tears to my eyes. Well said. Thinking of you and your family often and praying for you! God's Peace be with you each moment of each day!~Elisa

The VW's said...

I wish Mito never existed! Love, Hugs and Prayers!!!

Colleen said...

So many taken from this disease. My thoughts are with you!

Jenn said...

Tears, hugs, and a prayer every day to you. It is just sad, and I wish with all my heart it was not true. God bless you!