Today I was paying bills and came across the writeup that was mailed to us after Marie's last neurology appointment. His "impression" summing up the visit. "Leigh's Syndrome without expected decline".
My Marie defies expectations, I am so proud of her. I've known she was holding steady, but it is so nice to read it in writing. When she was diagnosed we felt like we were handed a death sentence. Now, she is without the expected decline. Prayer works, Marie proves it.
Now, on to "Not Me!" Monday:) Normally you're supposed to link to the "rules" but I can't find them so... I'm not gonna!
I did not call cereal dinner again last night.
I am not at all excited to go to see a very cool band with Luke tomorrow, in a bar, in a college town.... away from here. I am such a rebel.
I would not rub it in that the band is Cross Canadian Ragweed. That's right, eat your hearts out!
During a meeting regarding the dreaded Medicaid this morning I was not rude. I was not judgmental. I did feel bad about it. Well, actually, I didn't. Not one bit, not me!
I do not hate medicaid. Hate is a strong word. Wait, it's a strong emotion I feel. Yup, I hate it.
I do not secretly enjoy still nursing Marie to sleep after lunch because she's just so darn snugly, and I love how she's all smunched up in my arms. Besides, she's on the feeding pump. She thinks she's the bestest nurser ever.
I would never get excited about getting a new vacuum cleaner. I would not brag about it on my blog. I would not test it out on a Sunday afternoon because I need to see if all the hype is true. Nope, I am wayyyy to cool for that.
I would never post a picture of the vacuum on my blog! The hype, it's true!
Happy Monday everyone:)