Chocolate and Memories...

I was remembering kisses.  I used to bribe Marie with them to get chores done.  Vacuum house= three kisses, vacuum stairs= one kiss, bake cookies= five kisses plus however many chocolate chips she managed to get Josie to give her, clean bathroom= two kisses.  Rie would hold them on her tongue as the bits of chocolate would melt, she would almost hum "mmmmm".  She would be so excited when we would unwrap the foil.  She knew her chocolate was in there.  We don't buy kisses anymore.

I was remembering how much Rie enjoyed things.  Loved her chocolate, loved mac n cheese, hot dogs.  Loved playing in tents with Josie.  Whatever it was she approached it with the most pure happiness.  And we got to experience that too.  In some ways life was much simpler when Marie was here.  Our good and bad days were based only on how she was doing.  All the other details of life faded into the background.

I do not recall much worry wasted on our bank balance, or on the wheat, or on all these outside things.  Days were good if Marie was good, if she wasn't okay we worried about her.  I am grateful Lord that I no longer have to worry about her... I do miss her like crazy though.

I am so thankful God for memories, remembering is like spending time with her.  I can close my eye and remember her joy in eating bits of Hershey kiss and I am given a few minuets of time with my girl.  I can glance back at Sarah sleeping in the car seat and catch a glimpse of Maire's face as she dreams.  I brush Josie's hair and for a second instead of being the color of ripened wheat it's darker brown and full of ringlets and Little Mama is scowling at me for doing it.   Only for a second, but I am so grateful or the seconds that come, it is like spending time with her.

Thanksgiving was nice, we traveled and it's good to be home.  We got to spend time with my girlfriends from college and it was so good to be there with them.  With their children.  To watch them play...

Sarah has cut those little teeth right in front of the molars, top and bottom. Both came in last week and she was cranky and not sleeping well.  Josie cut her hair off and it's pixie cute.  She looks so grown up with her new hair-do.  I am trying to get my Christmas cards together...

It's been 15 months since I kissed my Rie...  I'm not feeling that raw hurt anymore but my goodness!  Do I ever miss that baby...

Thankful...

This year I feel real gratitude. I can say I am thankful and I can mean it.  Last year I was so lost, my heart was so broken...  This year I am thankful.

I am thankful for the way we have healed in a years time.  It is not a complete healing, there are times when my broken heart aches with a nearly unbearable pain, but it is a better place.

Heal me, O LORD, and I will be healed; save me and I will be saved, for you are the one I praise.

Jeremiah 17:14

I am thankful for the peace that has taken the place of despair in my heart.  There are times when I feel broken, when despair fills me.  But it is always replaced with the feeling of peace that passes understanding, and I now know exactly how it feels to be carried by my Lord.

Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid.

John 14:27 

I am thankful for my two beautiful girls, Josie and Sarah, who bring me so much joy.  I am humbled that I was trusted with Marie, my princess in Heaven.  From her we were given so much.  I would welcome them all again and again.

I am thankful for the people that have surrounded us in the last year.  Through them we have felt so much love, be carried so many times.  I am so grateful for the friends and family that surround us.

I am thankful every time I hear Sarah say the word "Mama..."  Josie call me "Mom" or sass me with "Mother".  I cannot wait to hear Marie utter that word when I see her in Heaven.

I am thankful for my husband.  I am so blessed that the last year has brought us closer together rather than driving us further apart.  We have God's hand upon us.  Never once has there been a resentment held, a word of blame cast...  Together we have rejoiced at the highest of highs and cried at the lowest of lows.

His mouth is sweetness itself; he is altogether lovely. This is my lover, this my friend, O daughters of Jerusalem.

Song of Solomon 5:16

This year I am grateful to have grown and matured in my faith as a daughter of God, a woman of Christ.  I am grateful for my Savior who gave His life for me.  I am humbled at the love that I have seen over and over with my own eyes.  I am thankful that traces of doubt have been replaced with conviction, faith, belief in what I am told.

Every day I miss Marie, every day I think of her and what it would be like if she were still here.  I imagine her face at nearly four years old.  How long her hair would be, if her eyes would still be so blue...  In Heaven she is thriving and I am grateful for answered prayers.  He healed her after all, "not my will, but Yours be done", and I try to thank God for it every time I pray.

This year my life is so much different from two years ago.  It is so much more hopeful than last year.  I pray you all have a blessed Thanksgiving.  I have said it before and will say it again, in my life I am BLESSED.

Blessed is she who has believed that what the LORD has said to her will be accomplished!"

Luke 1:45

What can you say?

Yesterday when I went to pick Josie up from school her teacher met me.  The moment I saw her on the sidewalk I knew something was up.  I told Josie to get in the car with Sarah and Mrs. McK filled me in.

Apparently in science they were studying fish and as part of that the watched the movie Finding Nemo.  At the beginning of the movie Nemo's mother dies.  Josie could not handle it.  Mrs. McK said she was shaking, crying and I am so grateful for this insightful, sensitive woman, she removed her from the classroom where she could grieve in private.  She was able to miss her sister and not have the other children watch her cry.  I am so glad her teacher was understanding of what she was going through, and more importantly took the time out of her day to let me know what happened.

Josie sat and read a book about penguins while the other kids watched the movie.

We talked about it at dinner that night and Josie said the part of the movie where the mother fish died just brought back to many scary feelings from the day that Marie was called home.  What can I say?  How do I ease that pain.  She's only six.  How can I tell her that day, that morning, that phone call, that ride home, those are my own nightmares.

I just told her that I love her so much and Jesus does too.  And I love Marie so much even though she doesn't live here anymore. It makes me so sad that Josie was so upset...  we seem to just be getting hit by aftershocks lately...  What can you say to a little girl missing her sister so much?  What can you say to explain that we are so far outside of normal?  What can you say?  Sometimes, a lot of times, in my life lately there just don't seem to be words...

Josie in July...  looking so very small...

Life...

Life keeps on happening.  I cannot believe it is already the middle of November.  I'm still amazed that it's fall, that its cold, that the days are shorter.  That is is dark at five o' clock.  That it's been 14 1/2 months...

I struggle with what to write about.  I'm good.  The girls are good.  Sarah is talking more, Josie is doing well in school.  I walk, chat with friends, try new recipes, shop, run around, teach Sunday school, try to contribute to some good causes...  Life moves on.

Only the season is one of reflection and I am struggling with sadness in my down times.  The moment it is quiet and calm and I am at a loss for what to do.  Because in those moments Marie's being gone is overwhelming.  I am missing her so much right now.  Missing who she was, that warm and snugly girl.  Missing who she would be now, who she would have become.  I am struggling not to be angry that she's gone.  I don't want to be.  

I keep routines because they help me cope, I am blessed with good friends who let me talk about Rie all the time and never make me feel weird for including her.  Because the truth is, some people do now.  

Fourteen months is a long time.  But it's really not very long at all.  It will definitely take more time than that to heal my heart.  I don't think it will be whole again until I am before Jesus. 

I feel cranky, anxious, rushed.  I feel lost.  And then in a moment I seem to have it together, I'm reminded why I'm happy, I laugh, I smile.  And then again I cry, I am frustrated.  I cant put a name to, or pinpoint the cause of my unhappiness.  It's just general.

I don't like that at all.  And the worst part is that I really feel kind of crappy for being so selfish.  I'm not worried about Marie at all.  She is Home, with her heavenly father.  She is happy, and she is perfect.  I am upset for me.  That she's gone and I don't get to see her.  I'm upset that Josie misses her sister and is struggling with is a lot right now.  I'm upset that Sarah doesn't try to say Marie's name yet because she's not here.  I'm unhappy that I don't get to snuggle Marie to sleep anymore, that I miss making her laugh.  It's really all about what I want, what I miss, what has happened to me.  And that is crappy and selfish.  So I'm trying to work through that.

And even though I'm feeling this way, it's not all bad.  There is a lot of joy in my days and it keeps the sorrow in check so that I'm not totally overwhelmed.  

Below are some photos of us... lately. 

 Pumpkin!

 Harvest party... being shy.

 First snow...

 Eating nutella off a spoon.

 A ghost and a dragon... trick or treat!

I am...

Still here.  I am still here.

I have been in a funk lately.  I think this may have been the longest I have gone in years without journaling.  Over a week of silence.  Call it feeling sorry for myself, being to busy, being cranky, being insecure...  I just haven't had it in me to write whats on my mind and in my heart.

I found myself struggling in the last week more than I have for a long time.  Another holiday without Little Mama.  Halloween was OK, it's always the day after that's the worst.  And I didn't know what to do with myself.  I feel like a bird, beating it's wings against the bars of my cage.  Fighting my reality, and it's totally futile.  I wish I could be content, sit and sing praises despite my situation.

The truth is that no matter how much I wish to be that ray of sunshine, that person of faith so strong that I am content with God's will and submit finding joy in whatever... I'm not that girl.  I'm flawed, and sinful, at at times I'm just totally overwhelmed with how much I miss my baby.

And then afternoons like I had today happen.  Josie and I went over an hour each way to be at the dentists office for ten minuets.  Lots of time in the car, just her and me.  We listened to the radio and cried at "I will rise" by Chris Tomlin  because it makes us think of Marie, we turned up Taylor Swift loud and sang along.  We stopped at Dairy Queen and I had a mocha moo-latte and Josie had a mini Oreo mint blizzard and we just enjoyed being together with no interruptions.

As I was driving I looked back in the rear view mirror and I saw her sitting there, singing the words to Taylor Swift's "Fifteen".  The sun was streaming in the window and her blond hair had fallen out of her pony tail and was floating around her face.  She looked at me with her blue, blue eyes and smiled with her father's mouth and I was struck dumb by the beauty of my oldest daughter.  The one that's been through so much, that worries about me, that argues with her Daddy because they are so alike.  The girl that looses herself in books, daydreams and wants to marry a farmer someday.  God trusts me with her...  I am lucky.

Yesterday I beat my wings against the cage and cried, today I am able to sit on my perch and sing praises... it is by the grace of God and His blessing of peace in my heart...  I am... 

Love this...

"Lord make me a rainbow, I'll shine down on my mother
She'll know I'm safe with you when she stands under my colors,"
If I Die Young, The Band Perry

Is that not the most beautiful image?  Can't you just see my Little Mama, all decked out as a rainbow?

Quiet...

I've felt quiet lately.  It's not that I don't have a lot to say, I'm just not sure how to say it...  And we've been busy.

Our days are moving on.  Last week Luke turned thirty.  It sounds so young really... I remember when thirty sounded like the end of the world.  Now, being thirty doesn't really fit the way  I feel inside.  I feel like I've seen to much for thirty, like Luke's been through too much for just being thirty.

We celebrated and had a great time.  We actually went out, together, with friends to a local bar.  I hadn't been out with Luke to a bar since I was pregnant with Marie and then I was fortunate enough to have the responsibility of getting him home.  It has been a long time since we went out like that to just have fun with friends. 

I had a very nice time and made it home to pay the babysitter and get myself to bed at a decent hour which was good because the girls were up at six.  Luke stayed out a little later and he didn't feel very good the next day.  I think going out reminded us of why we never really do it!

Saturday was his actual birthday and I made lasagna and tiramisu layer cake and it was a good day.  Still, on days that are milestones or markers the fact that we are celebrating without Marie carries more sting than usual.  For Luke...  Well, she was HIS baby.  From the moment she was born Marie and Daddy had something special, something that had nothing to do with me.  Whenever she was scared, or upset, or something hurt it was Daddy she'd reach for... He was so incredibly proud to have that little girl.  On his birthday I was sad for him, to celebrate without his little princess.

Once upon a time, long, long ago I thought very different things about what our life would be like as we entered this age.  Now, I don't really plan so much.  We just make do, we get by... and it's getting a little easier but the missing her isn't getting any lesser...

Josie had a rough Sunday and wound up wearing my necklace that reads "Marie Isabel".  She told Luke it helped her not to feel so sad, that somehow it kept the tears away.  I think I wear it for the same reasons some days.  She really missed her sister.  We had put together a Halloween ginger bread house and she was looking at it, and remembered the ones we had done with Marie and just started crying.  I don't know what to say or do during these times so I just rock her till the tears are dried...

Little Princess Sarah is cutting two teeth, on the bottoms on either side of the front ones.  The wind blew in today and its gusting 40 miles an hour outside of this house.  The orange, yellow and gold leaves will be gone after this week and the trees will be blown bare.  It's really, really dry here and we need a rain.  God knows the timing but it's hard not to worry because the wheat doesn't have much time left to get the moisture it needs.  We have pumpkins on the front steps and we will have a little ghost and a little dragon keeping us busy this weekend...

I wonder about Marie.  A friend of mines little girl borrowed our Tinkerbell dress up clothes.  She is just turned four and will be Tinkerbell, I love that she will be wearing them.  I watch her and imagine...  I think of Marie and I have a feeling she would have been Tinkerbell too, and they would have gone running around together, bossing everyone around because in my daydreams she's not sick anymore...  We miss so much...  Just when you think the grieving is letting up you are sad for something that never happened... Something that was never....

But she would have been Tinkerbell I think, and I would have curled that brown hair...  We'd have painted her nails and toes orange and black and if, just maybe she'd never gotten sick she would have danced and twirled around...  Just like she is in Heaven.

New...

It was time to change it up... I'm still working on it.  I changed the photos of my girls to the left... I love Josie there, the looks so amazingly free.  Marie and the silly smile that I miss, that brightened my days... Sarah and that look.  She is so serious about figuring it all out.  I love the way if you look at Sarah and Marie you can see they have the exact same blue color eyes.  It's deep, dark, turquoise and if you look at their father you can see the color reflected there.  I love those eyes...

Please pray for Abigail...

Please pray for Abigail.  She is having a tough time again and it is so heartbreaking to hear of her suffering so much.  Please visit her site and leave her family a few words of support, and include this sweet girl in your prayers...

Laughter...

This morning Josie was watching the Disney channel and one of the old Mickey Mouse cartoons came on.  Luke pointed out to her that the cartoon was older than he and I are.  She looked at him and said "Really?  And the amazing thing is, it's in color!".

Fingerprint Friday...

There is a song by Steven Curtis Chapman that says:
I can see the fingerprints of God
When I look at you
I can see the fingerprints of God
And I know its true
You're a masterpiece
That all creation quietly applauds
And you're covered with the fingerprints of God

So look around you and see where YOU can see God's fingerprints. Is it in nature? Kids? Animals? Where do you see them? Here's how to join.

In my life... "Nearly all of God's jewels are crystallized tears"...

Last night I cried myself to sleep.  It's not unusual but it doesn't happen as often as it used to anymore.  I laid down in bed and Luke and I were talking about the devotion we'd just read and I was overcome...  How on earth do we get by without our child daily?  How does life move forward without sweet Marie?  How is it I can smile, laugh, play, do so many things without her?  Once I believe that I could not breath without her in my arms.  I knew certainly I would not be able to live without her, that life would be a barren wasteland without Little Mama.  I have to tell you in complete honesty, without Little Mama here on a daily basis my life has a gaping hole.  But it is not how on earth we get by, it is instead How in Heaven.

As I lay with my head on Luke's chest and sobbed tears for my baby he reminded me that we get by every single day because we have HOPE.  We have the promise God made us and the ransom Jesus paid and we know just where that child is.  Just because I cannot wrap my arms around her doesn't mean she isn't HELD.  She is in the arms of THE ONE who made the sun and stars, who loves her more than I can even begin to understand and I love that little girl with every cell of my being.

I am beginning to come to a place where I embrace the pain.  The sorrow I feel is part of being mother to Marie and I would not trade that for anything.  I would welcome her over and over again even knowing now how badly it would hurt.  The pain I feel is the measure of how much I love her, and how wonderful she is, and what a witness her life was. 

So my fingerprint... it would be the reminder from my Luke... and the blessing that he is in my life.  My fingerprint is the HOPE I cling to every day, that keeps me from loosing it and crying out in despair.  My fingerprint is the FAITH I have gained since Marie was born, the things she taught me, how she changed my life.  My fingerprint is the LOVE I feel that I cannot explain, the peace I have that surpasses all understanding. 

I miss her so much, but because of our Lord I am able to dry my tears and understand that I must just wait (not-so-patiently) and I will get to hold that little girl with golden skin, brown curls, and purple toenails again... I have faith in God that it will happen just as He told me. Acts 27:25

"Flowers live by the tears that fall,
From the sad face of the skies;
And life would have no joys at all,
Were there no watery eyes.

Love the sorrow for the grief will bring
Its own reward in later years;
The rainbow! See how fair a thing
God has built up from tears." Henry S Sutton

This is the song I heard on the way home from taking Josie to school today... be sure to stop the music on the left before you begin the video...

Today...

It's beautiful outside.

I have piles and piles of laundry to put away.

I thought about Christmas shopping.  Already.

Luke is picking corn.

Josie went to school wearing earrings shaped like little cupcakes.

I am making chicken parmesan for dinner.

Sarah just woke up and I need to go get her...

Today, everything is okay...

Beautiful...

Today on the drive home from the elementary school I had a heavy heart.  Josie was off to school, Sarah was intent on taking her socks off in the car seat, it is really cool this morning... And it is October, 2010...  The world is different than it used to be.  As much as I try to just count my blessings I sometimes cannot get past the desire to have three little ladies here... A house full of children, too much on my plate.  I want to have noise, messes, three little cheeks to kiss at night and more laundry to do.  I want my baby, I miss my girl.  There's this empty place and my heart hurts.  There is a gap in our family that cannot be filled... And it just is inconceivable that I have not seen her for thirteen months, and that I have years to go.  Because despite how much peace I may have, how I can accept that my child was called home, I am her mother.  And I would prefer to have her here... And then this song came on the radio....

Beautiful (MercyMe)

I think the lyrics are intended for someone older but when I hear those words all I think is Marie.  And God used this song to remind me of how much He loves her too...  I'm sad today, but I'm so glad that Marie is with Jesus...

"You're beautiful
You are meant for so much more than all of this"

"You are treasured, You are sacred, You are His"

"Before you ever took a breath
Long before the world began
Of all the wonders He possessed
There was one more precious
Of all the earth and skies above
You're the one He madly loves
Enough to die..."

"You're beautiful
You're beautiful
In His eyes

You're beautiful
You were meant for so much more than all of this
You're beautiful
You are treasured, You are sacred, You are His"

She was always more His than mine after all, I cannot be upset that He would want her there.  This world is so imperfect and can be so cruel, she was made for more... 

Days...

Days are flying by on me right now...  sometimes I'm at a loss for what to say.  I don't know what to write.  I try to journal things so that one day the girls can look back and read about their childhood... but because I'm not updating on Marie, and I'm no longer in the depths of the ocean of grief I sometimes don't know what to say.

There's our everyday.  We get up, get ready for school.  Sarah and I take Josie to school and come home and do dishes.  Then we meet up with a friend and walk the dog.  Home for a shower and then there's whatever chores the day holds.  We stop and play, stop for lunch.  Nap time in the afternoon, on Luke and I's big bed because Sarah won't nap in her crib.  While she sleeps I do bookwork, or like today, I mended Luke's jeans.  Then we pick Josie up, run whatever errands are needing done, and come home to play a bit before I make dinner.  Then devotions, bath and bed. 

Josie and Sarah are starting to play really well together.  My heart is filled with joy at that.  They didn't play together for a long time.  Sarah is getting bigger and it makes me happy to see them do things together. 

Our days have a routine, and in that I see flashes of the past constantly.  Something that happens now brings up a memory of something that happened when Marie was here.  I sometimes feel like I have on foot in the present and one stuck in the past.  I am blessed to have so many memories.

Josie is such an amazing big sister.

Sarah is getting braver every day...

Sarah is also becoming a bit of a Daddy's girl...

Though it's unlikely that we will ever have another girl as big a fan of her Daddy as Marie...

Fall is coming on.  The date says it's been here but just today it finally felt it.  The trees are changing, the air has that feel and summer is definitely on it's way out.  It's nice to have the change.  We decorated for fall Saturday, Josie is so excited for Halloween.  I'm going to try to make her costume this year...

And that's how the days go.  I don't know why it feels so busy, but they're over in a flash.

The grief is better now, it comes in waves but the stretches of peace are getting longer.  There are still moments in the day when I look at a picture in disbelief, how on earth could our Rie Rie not be here?  I don't struggle with it anymore.  The best explanation I can give is that something happened that I really don't like.  But I have accepted that I cannot change it.  I have resigned myself to the fact that my heart will ache for the rest of my life and I am just going to have to get by.  I don't like it but I can't fight it so we'll make the best of it.

And this is after all only a moment, isn't it?  The next forty, fifty, sixty years will be but a heartbeat and I will climb steps to the throne and throw my arms around Marie and throw myself at Jesus' feet and I will probably weep.

...and the ransomed of the LORD will return. They will enter Zion with singing; everlasting joy will crown their heads. Gladness and joy will overtake them, and sorrow and sighing will flee away.  Isaiah 35:10 NIV

Life is such a strange thing.  Mine has taken paths that I never knew existed.  Poor Josie has walked through more in six years than so many older than her.  Sarah in her first week had lived through more sorrow than many will ever know.  God chose them for a reason, just as He blessed Luke and I with Marie for a reason...

So it's fall and the leaves are changing and there's a bite in the air.  There are pumpkins on the steps and I'm using my oven again.  Josie is doing well and Sarah is growing like crazy.  Her one year appointment today told us she is in the 95% for height, the 25% for weight.  She is built like Marie, oh so tall and thin.  And so beautiful.  They all are.  Am I a lucky Mommy or what?

I moved the furniture around in the entry way, the first change I have made to the house since Marie was called home.  Before now I was needing to keep it the same...  For the first time in a long time I am beginning to be able to call myself blessed and really mean it instead of just hoping to mean it...

Not a first time mom...

I am not a first time mother.  I have three beautiful little girls.

Josie was so easily over-stimulated as a baby.  She would loose it and cry and cry.  I would often find myself in a quiet room away from the group so that Josie could calm down.  Marie was always so tiny.  I remember being consumed with a feeling that she needed protecting.  I never let her cry long, always had her in my arms.  Now with Sarah I am just sometimes at a loss.  She's not my first, I've done this twice before.  The truth is though that there are times when I have absolutely no idea what to do with Sarah.

She cries in the night.  Lately she's been waking up and staying up.  Rather than take it for what it is, her age, testing limits, figuring out day and night, whatever; I worry.  I worry like a champion.  I am up at night in a quiet house with a child who is denying herself rest and it scares me.  She will cry herself sick.  Literally cry until she throws up.  It adds to my worry and makes me a basket case.  Because Marie lost the ability to sleep through the night when she got sick.  I can see the difference, the rational part of me knows that with Sarah it's not the same but I don't know what to do about it.  Marie vomited without warning several times a day for months until it was stopped surgically.  I will never look at vomit the same way again.

All signs point to Sarah being a completely healthy, full of life thirteen month old baby.  The problem is, in the course of my life I have completely forgotten how to take care of a healthy baby.  I know crisis.  I know how to soothe a child getting a blood test for the millionth time.  I know how to change gauze bandage and hook up tubing and make it into a game.  I know just how to cup my hand and thump a back to help weak lungs cough.  I know to rock and sing for hours to try to distract from discomfort.  I know how to read my child's eyes and look for the meaning there, and just how to massage muscles tightened from movement disorder. And when something goes haywire with my completely healthy baby I totally over react. 

I became so good at handling crisis... I've forgotten how to live normally and don't know that it will ever come back to me again.  Sarah is doing things all babys normally do.  I just don't live in normal any more.  Is this a sign of that, could this be the reason for that?

And I need to remember to cast all my worries on the Lord, His shoulders are bigger than mine.  And this will pass...  Luke and I may be a little overprotective, a little compulsive, perhaps we over react a bit.  I think it made us better parents to Marie... and hopefully Sarah will benefit from that too... it's just so different caring for her... it was easier to calm every cry and snuggle it all away...  so that's generally my strategy with Sarah.  Now if I could just get her to sleep a little better...

Fingerprint Friday...

There is a song by Steven Curtis Chapman that says:
I can see the fingerprints of God
When I look at you
I can see the fingerprints of God
And I know its true
You're a masterpiece
That all creation quietly applauds
And you're covered with the fingerprints of God
So look around you and see where YOU can see God's fingerprints. Is it in nature? Kids? Animals? Where do you see them? Click here to find out how to join in!


My fingerprint today is pretty simple.  It's been a hard week. Luke's been in the field, Josie's been having a bit of hard time at school with the catty way that girls can be.  My hearts been heavy and my little princess Marie has been on my mind.  Even though time passes the longing to see her face, to kiss her forehead, to hold her little hands does not decrease.

This morning Josie and I read psalms over breakfast before she went to school.

Thank you Lord.  Thank you for reminding me to read the Bible to my child.  Thank you for giving us your words and loving us so much.  Thank you for Jesus and for the knowledge that we will rejoice in Heaven together one day. 

It was a good way to start the day when I so easily feel burdened and sorrowful.

He will cover you with his feathers, and under his wings you will find refuge; his faithfulness will be your shield and rampart. Psalms 91:4

Because of Mito...

Four years ago I didn't know what Mitochondrial Disease was.

Now...

Because of mito Sarah will grow up knowing her older sister only from pictures and videos.

Because of mito Marie never will go to preschool or have a first day of kindergarten.

Because of mito there is an empty chair at the table.

Because of mito there are many children we've come to know and care for that suffer so much every day.

Because of mito most of them can't say a word because it's robbed them of the ability to express themselves that way.

Because of mito I don't make oatmeal in the morning anymore.

Because of mito Josie can't talk to her best friend.  Her best friend is in Heaven.

Because of mito I've made some amazing friends, but if I was pushed I'd have to say I wish we didn't know one another at all.  I wish we didn't have this terrible disease to connect us.

Because of mito our hearts are broken.

Because of mito Marie never got to grow up...

We have had so many blessings in our life, and God has used this storm to draw us closer and grow our faith in ways that we are so grateful for.  I try to always find the praise in sorrow but the truth is its just sad sometimes.

Because of mito our second daughter is in Heaven.  We rejoice that we will see her again, but it is so hard to be without her here.

Because of mito I miss that smile...


www.umdf.org

Mitochondrial Disease Awareness Week

This is it.  Time to raise awareness and call attention to a disease that affects and estimated 1 in 3000 people.  A disease that no-one knows about, a disease that steals, a disease that kills.  Marie lived with Leigh's Disease (one of the many recognized forms of mitochondrial disease) for nearly 2 1/2 years before God called her home.

Leigh's Disease stole from her the ability to express herself, to move on her own, to hold her head up.  Marie never had the chance to speak a first word or to take a first step.  This disease left her in a body that was broken, a beautiful little soul trapped in a cage. She had a terminal disease and though her spirit shone and her smile was the most breathtaking thing I will see this side of Heaven we watched her regress and loose things.  We didn't have very long with her and though we were blessed by the time we did have there is just so much we missed.  So much that mito stole.

Please join me in raising awareness so that someday there will be better treatments, maybe even a cure.  So that someday I will be able to tell Marie's story without having to explain the disease she suffered from.  It is so hard to have lost a child to a disease no one knows anything about.

Please join me in spreading the word! For more information please visit the Mitochondrial Disease Action Committee, MitoAction.

Meet Blye...

Is he handsome or what?  In real life that smile will knock you straight out. 

Blye is in kindergarten, he is part of our church family and he is in my Sunday school class.  I love seeing Blye.  For the obvious reasons, he is filled with a joy for life that is contagious.  For my own selfish reasons, he is physically much like Marie and in being near Blye it freshens my memories of her. 

I want to introduce everyone to Mr. Handsome because there are going to be some big things happening in his life soon.  God has his hand on this child.  Blye has cerebral palsy.  He has been approved for a special therapy in Germany that has the potential to really have a positive affect on him.  From a tiny farm town in Colorado all the way to Germany. 

Please visit his blog to learn more about him and what his family is doing to raise funds for the trip. 

If God lays it on your heart leave some words of support, or if you are able to contribute know that it will make a huge difference in the life of an amazing little man.  And make his Mama smile, she has a beautiful smile too...

Worth a thousand words...

Our last few weeks in pictures...

My cupcakes turned out pretty good...

Sometimes, when it's your party you can cry if you want to...

And then someone will give you a cupcake and everything will be OK.

Presents are nice too.

I just cannot believe she is this big already... amazing!

We went to Kansas for my nephews birthday and on the way home we decided to take pictures in every state we passed through...

Kansas was lovely...

Nebraska was patriotic...

But we love our home!

Sarah made her way into my pantry cabinet yesterday and could not figure out how to get out...

Josie made a wish...

And they played with Daddy when he got in from the field...

And this is our life, although it makes me sad this morning that there are no new photos of Marie to share...  I miss her little face...