In the last few days Marie has been doing so well. Yesterday evening I saw a few more seizures, but this evening from about 7pm on they were nearly non-stop. I have her meds and she fell asleep but woke having a pretty nasty episode, she held her breath for a good 8 seconds or so. I hate that they wake her up from peaceful sleep. Please join me in praying that this is not a beginning of rough times. I'm worried about Landon, plus with Marie having her first rough evening in almost a week I'm having a hard time. Please pray for both babies. Poor Landon is suffering and my heart is breaking for him and his family. This is terrifying.
On the plus side, massage did wonderful things. She relaxed, had a good bowel movement (thank you Lord). She really felt good I think. I've been doing massage on her myself since Wednesday when our occupational therapist taught me how. I'd like to get a real massage for her, one that lasts awhile, more for relaxation that anything else. I think it would so help her. Marie just can't control her body well, and her little arms and legs stiffen and jerk. I know it must be painful, and as her brain misfires it is hard to know what to do to help her relax.
I should be in bed... thank you so much to everyone who stops in, and checks on our family, especially my sweet Marie. Also, thank you to everyone who prays on our behalf and for Landon and his family.